Dr. Pastora Gallego is a cardiologist with particular expertise in natural history of post-operative Adult Congenital Heart Disease patients and advanced cardiac imaging. She completed her specialization in Cardiology at La Paz University Hospital in Madrid and she has been collaborating with its ACHD Unit in clinical research and publications for the last 20 years. She is founding Director of the Intercenter Adult Congenital Heart Disease Program at the Heart Area in Seville, which is a collaborative program between Virgen del Rocio and Virgen Macarena Hospitals and the University of Seville. In 2010, after finshing her doctoral postgraduate study in Echocardiographic Assessment of Functional Anatomy of Aortic Regurgitation at the University of Seville, she holds a visiting research position at ACHD Units at Toronto General Hospital and Royal Brompton Hospital. She participates in ACHD educational activities and is involved in ACHD focused organizational activities, including serving as the chair of Executive Committe of the Registry of Adult Congenital Cardiac Disease in Andalusia (RACCA), conducted since 2012. Since 2016 she is a Nucleus Member of the ESC Working Group on GUCH and she is on the Pediatric Cardiology and Congenital Cardiac Disease Council of Spanish Society of Cardiology. She also has experience in the subfield of publishing as an associate editor of Revista Española de Cardiologia,an international scientific journal dealing with cardiovascular medicine and the official publication of the Spanish Society of Cardiology. She maintains continuous research activities and (co)- authored numerous peer reviewed papers.
Many young adult survivors of repaired congenital heart defects are at premature risk of sudden cardiac death (SCD). Knowledge of SCD predictors would facilitate clinical decision making of which patients might benefit from prophylactic therapies. Despite research efforts, stratification of SCD risk remains a challenge. Together with a relatively low rate of events, factors associated with sudden death seem to differ among the diagnostic categories and, until recently, most available information involved single-center studies with limited statistical power. This talk will focus on risk factors and outline current recommendations regarding management. Since the population of ACHD survivors has now reached a critical number, larger collaborative projects that generate objective criteria for risk assessment appears mandated.